The Korea Hemophilia Association is distributing a poster to promote "Red Tie Challenge."
/Photograph by Chang Ji-hun
“The 2018 Ice Bucket Challenge,” a charity campaign to help people suffering from amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease, was highly successful in raising awareness. The original goal to establish a hospital for ALS patients was achieved as the challenge raised enough money for the charity. Contrary to the successful “Ice Bucket Challenge,” other challenges for intractable and rare diseases are not well known worldwide. The so-called “Red Tie Challenge,” for patients with Hemophilia, a disoder that impairs the body’s ability to make blood clots, also needs attention.
What is the ‘Red Tie Challenge?’
The campaign, initiated by the National Hemophilia Foundation, began with the name “Red Tie Challenge” for the purpose of promoting positive awareness of Hemophilia. The way to participate in the Red Tie Challenge is not difficult. Just prepare a red tie or tie-shaped pin. The red tie symbolizes that the world community is chained to the blood community. Then, with the tie or the pin, take a video for #Red Tie Challenge. Lastly, nominate a friend to let this challenge go on and then upload the video.
Lack of interest in ‘Red Tie Challenge’
Compared to the “2018 Ice Bucket Challenge,” which collected more than 1.1 billion won, the World Hemophilia Foundation has collected about 50 million won. Therefore, the Red Tie Challenge Korea branch had to promote more without sponsorship due to a lack of interest. They focused on promotion for improving awareness of hemophilia.
Kim Ui-yeong (Freshman, Department of Industrial and System Engineering) said, “I have never heard about the red tie challenge.” There are three reasons why we are not aware of this challenge. First, some sufferers have an aversion to reveal themselves as patients. This weakens the chance to promote for the challenge. Second, lack of accessibility and publicity cannot attract people’s attention. Son Wan-ho, the manager of the Hemophilia Association said, “The content of the challenge can be less fun than that of the Ice Bucket Challenge, so it is hard to attract people.” Third, more of civic groups’ help is needed. In Korea, the number of hemophilia support groups is small compared to that of other countries. Ju Sang-chun, the deputy head of nurse of Korea Hemophilia Foundation said, “In Korea, the role of the foundation is large because there are few civic groups. However, there are many civic groups in Canada, so the challenge is quite active due to civic groups.”
Patients with rare and intractable diseases live with their illness hidden. They are not asking for much to the society. What they need is enough attention and encouragement. Kim Ui- yeong said, “The purpose of the Red Tie Challenge is to improve awareness of hemophilia patients. I hope the publicity goes well and that many people can participate.”
Chang Ji-hun firstname.lastname@example.org
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